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Showing posts from 2017

From running shoes to IV poles

In one week I went from finishing the New York City Marathon to inpatient status on IV medications. It was pretty much the opposite of a couch to 5k plan and more like the 26.2 miles to hospital bed plan. For me there are several different physical and emotional aspects that I have to process before accepting a hospitalization. When I catch a cold it always causes me to feel fear because I don't know how this cold will effect my lungs - will I get over it, will I need oral antibiotics or IV antibiotics?  Once the cold sets in and I feel the side effects of cystic fibrosis I start to feel the wrath of how terrible this disease can be - a cough that rattles my bones, the never ending mucus that clogs my airways, breathlessness, little sleep and aching lungs. Then comes the anxiety - the anxiety kicks in because the thoughts that this could be my new normal, that my lung function will never go back up and the thought that this breathless feeling could become permanen...

Time Stamp

Time is a constant in everyones lives and continues to move forward whether we like it or not. Our own personal perception of time can change based on events going on in our life. Time seems to move slowly for someone who is in the hospital and eager to go home yet time can seem like it is moving forward too quickly when we are enjoying ourselves and in the moment. Time is precious. My wonderful son will be 2 and I can't hold onto time fast enough. I often scroll through my pictures and laugh at the wonderful moments that I have had with my family. Sometimes tears fall because these moments are treasured and my heart is full of love and gratefulness. The slow moving days filled with lack of sleep and the struggles of a colicky baby seem to fade. Our pictures and memories spark emotions so raw and true. Time continues to charge on despite our yearning to press pause. The other day a memory on my Facebook popped up in my notifications. It was a picture...